{"id":6,"date":"2025-04-28T16:31:33","date_gmt":"2025-04-28T16:31:33","guid":{"rendered":"https:\/\/kidswithspg3a.com\/?page_id=6"},"modified":"2025-05-15T14:49:36","modified_gmt":"2025-05-15T14:49:36","slug":"homepage","status":"publish","type":"page","link":"https:\/\/kidswithspg3a.com\/es\/","title":{"rendered":"P\u00e1gina de inicio"},"content":{"rendered":"<div class=\"wp-block-cover alignfull has-parallax\" style=\"border-top-style:none;border-top-width:0px;border-right-style:none;border-right-width:0px;border-bottom-color:var(--wp--preset--color--palette-color-2);border-bottom-width:5px;border-left-style:none;border-left-width:0px;margin-top:0;margin-bottom:0;min-height:100vh;aspect-ratio:unset;\"><div class=\"wp-block-cover__image-background wp-image-27 size-large has-parallax\" style=\"background-position:50% 50%;background-image:url(https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b651826c8978857d3dd25_Rectangle-72-min-1024x661.png)\"><\/div><span aria-hidden=\"true\" class=\"wp-block-cover__background has-background-dim-10 has-background-dim\" style=\"background-color:#5f80b6\"><\/span><div class=\"wp-block-cover__inner-container is-layout-constrained wp-block-cover-is-layout-constrained\">\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-28f84493 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\"><\/div>\n\n\n\n<div class=\"wp-block-column has-palette-color-8-color has-text-color has-background has-link-color wp-elements-a5cd7d73748f20e184ba6e9dcb26ca04 is-layout-flow wp-block-column-is-layout-flow\" style=\"background-color:#302d30b8;padding-top:var(--wp--preset--spacing--60);padding-right:var(--wp--preset--spacing--60);padding-bottom:var(--wp--preset--spacing--60);padding-left:var(--wp--preset--spacing--60)\">\n<div class=\"wp-block-group is-content-justification-left is-layout-constrained wp-container-core-group-is-layout-12dd3699 wp-block-group-is-layout-constrained\">\n<figure class=\"wp-block-image size-full is-resized\"><img decoding=\"async\" src=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/kids-with-spg3a-white-text.svg\" alt=\"\" class=\"wp-image-31\" style=\"width:300px\" title=\"\"><\/figure>\n<\/div>\n\n\n\n<p>Nuestra misi\u00f3n es conectar a los ni\u00f1os con SPG3A con:<\/p>\n\n\n\n<ul class=\"wp-block-list is-style-icon ghostkit-custom-2sGPhk\">\n<li>otros, para compartir experiencias de vida, terapia y tratamiento<\/li>\n\n\n\n<li>investigadores, para ayudar con sus esfuerzos para encontrar una cura<\/li>\n<\/ul>\n\n\n\n<p>Donde quiera que est\u00e9s en el mundo, <strong>por favor \u00fanete a nuestra comunidad de <\/strong><strong>SPG3A<\/strong> para seguir las \u00faltimas investigaciones.<br>\u200d<br>\u00a1Cuando se trata de encontrar una cura, la fuerza est\u00e1 en los n\u00fameros!<\/p>\n\n\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button is-style-outline is-style-outline--4\"><a class=\"wp-block-button__link has-palette-color-8-color has-text-color has-link-color has-border-color has-palette-color-8-border-color wp-element-button\" href=\"https:\/\/kids-with-spg3a.mn.co\/\" target=\"_blank\" rel=\"noreferrer noopener\">\u00danete a Nuestra Comunidad<\/a><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-columns alignfull is-layout-flex wp-container-core-columns-is-layout-f0342b05 wp-block-columns-is-layout-flex\" style=\"margin-top:0;margin-bottom:0\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"987\" src=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f07ee5b9b5e8965ba5c63_2-1024x987.jpg\" alt=\"\" class=\"wp-image-22\" title=\"\" srcset=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f07ee5b9b5e8965ba5c63_2-1024x987.jpg 1024w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f07ee5b9b5e8965ba5c63_2-300x289.jpg 300w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f07ee5b9b5e8965ba5c63_2-768x740.jpg 768w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f07ee5b9b5e8965ba5c63_2-1536x1480.jpg 1536w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f07ee5b9b5e8965ba5c63_2-2048x1973.jpg 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"987\" src=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f062e4caf383bfc0d53b1_3-1024x987.jpg\" alt=\"\" class=\"wp-image-28\" title=\"\" srcset=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f062e4caf383bfc0d53b1_3-1024x987.jpg 1024w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f062e4caf383bfc0d53b1_3-300x289.jpg 300w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f062e4caf383bfc0d53b1_3-768x740.jpg 768w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f062e4caf383bfc0d53b1_3-1536x1480.jpg 1536w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f062e4caf383bfc0d53b1_3-2048x1973.jpg 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-55a13620 wp-block-columns-is-layout-flex\" style=\"margin-top:-200px;margin-bottom:-100px\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:10%\"><\/div>\n\n\n\n<div class=\"wp-block-column zindex has-palette-color-9-background-color has-background is-layout-flow wp-block-column-is-layout-flow\" style=\"padding-top:var(--wp--preset--spacing--60);padding-right:var(--wp--preset--spacing--60);padding-bottom:var(--wp--preset--spacing--60);padding-left:var(--wp--preset--spacing--60);box-shadow:var(--wp--preset--shadow--crisp);flex-basis:80%\" id=\"about\">\n<h2 class=\"wp-block-heading has-text-align-center\" id=\"quienes-somos\">\u00bfQUI\u00c9NES SOMOS?<\/h2>\n\n\n\n<p class=\"has-text-align-center\">Ni\u00f1os con SPG3A fue establecido por dos familias con ni\u00f1os peque\u00f1os que tienen paraplej\u00eda esp\u00e1stica tipo 3A.<\/p>\n\n\n\n<p class=\"has-text-align-center\">A Emily se le diagnostic\u00f3 SPG3A en 2020 cuando ten\u00eda 18 meses de edad.<br>A Carter se le diagnostic\u00f3 par\u00e1lisis cerebral poco despu\u00e9s de no alcanzar los hitos motores del desarrollo cuando ten\u00eda seis meses. Su diagn\u00f3stico fue revisado a SPG3A cuando ten\u00eda 5 a\u00f1os, despu\u00e9s de pruebas gen\u00e9ticas en el Hospital Infantil de Boston.<br>Tanto Carter como Emily tienen variantes que son \u201cde novo\u201d, no heredadas de sus padres, y sus s\u00edntomas son complejos, afectando no solo sus piernas sino tambi\u00e9n sus extremidades superiores y m\u00fasculos orales.<\/p>\n\n\n\n<p class=\"has-text-align-center\">El abuelo de Carter, <a href=\"https:\/\/en.wikipedia.org\/wiki\/Joseph_Avellone\" target=\"_blank\" rel=\"noreferrer noopener\">Joseph Avellone, MD<\/a>, tiene una amplia experiencia en la industria de la salud y la biomedicina.<br>Fund\u00f3 la Fundaci\u00f3n Carter para la Investigaci\u00f3n Neurol\u00f3gica para patrocinar investigaciones sobre<br>la causa y el tratamiento de enfermedades neurol\u00f3gicas raras en ni\u00f1os. <a href=\"https:\/\/www.massgeneral.org\/doctors\/21073\/craig-blackstone\" target=\"_blank\" rel=\"noreferrer noopener\">Dr. Craig Blackstone<\/a>, Jefe de Trastornos del Movimiento, Departamento de Neurolog\u00eda, Hospital General de Massachusetts, es el Asesor Cient\u00edfico Principal de la Fundaci\u00f3n y es un destacado cient\u00edfico investigador con un enfoque a largo plazo en las paraplej\u00edas esp\u00e1sticas hereditarias.<\/p>\n\n\n\n<p class=\"has-text-align-center\">Las dos familias trabajan estrechamente con investigadores y compartir\u00e1n actualizaciones de investigaci\u00f3n con otras familias en la <a href=\"https:\/\/kids-with-spg3a.mn.co\/\" target=\"_blank\" rel=\"noreferrer noopener\">Plataforma de la Comunidad de Ni\u00f1os con SPG3A<\/a>.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:10%\"><\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-cover alignfull has-parallax\" style=\"margin-top:0;margin-bottom:0;padding-top:var(--wp--preset--spacing--80);padding-bottom:var(--wp--preset--spacing--80)\"><div class=\"wp-block-cover__image-background wp-image-25 size-large has-parallax\" style=\"background-position:50% 50%;background-image:url(https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b6515ae143150e06c4365_Rectangle-10-min-1024x693.png)\"><\/div><span aria-hidden=\"true\" class=\"wp-block-cover__background has-background-dim-20 has-background-dim\" style=\"background-color:#0d527d\"><\/span><div class=\"wp-block-cover__inner-container is-layout-constrained wp-block-cover-is-layout-constrained\">\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-4c1dd492 wp-block-columns-is-layout-flex\" style=\"margin-top:var(--wp--preset--spacing--80);margin-bottom:var(--wp--preset--spacing--80)\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:15%\"><\/div>\n\n\n\n<div class=\"wp-block-column has-palette-color-8-color has-text-color has-link-color wp-elements-8974b8675801a73361e994687eb09e55 is-layout-flow wp-block-column-is-layout-flow\" style=\"padding-top:var(--wp--preset--spacing--60);padding-right:var(--wp--preset--spacing--60);padding-bottom:var(--wp--preset--spacing--60);padding-left:var(--wp--preset--spacing--60)\">\n<div class=\"wp-block-group is-content-justification-left is-layout-constrained wp-container-core-group-is-layout-12dd3699 wp-block-group-is-layout-constrained\">\n<h2 class=\"wp-block-heading has-text-align-center\" id=\"que-es-spg3a\">\u00bfQU\u00c9 ES SPG3A?<\/h2>\n<\/div>\n\n\n\n<p class=\"has-text-align-center\">SPG3A es el tipo m\u00e1s com\u00fan de HSP, o Paraplej\u00eda Esp\u00e1stica Hereditaria, en ni\u00f1os.<br>El s\u00edntoma principal de HSP es la dificultad para caminar debido a m\u00fasculos de las piernas tensos (esp\u00e1sticos) y d\u00e9biles.<br>Algunos pacientes presentan s\u00edntomas m\u00e1s complejos que afectan otras \u00e1reas del cuerpo.<br>La gravedad de los s\u00edntomas suele empeorar con el tiempo.<\/p>\n\n\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-a89b3969 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button is-style-fill\"><a class=\"wp-block-button__link has-text-align-center wp-element-button\" href=\"https:\/\/kidswithspg3a.com\/about-spg3a\/\">Saber M\u00e1s<\/a><\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:15%\"><\/div>\n<\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-cover alignfull\" style=\"margin-top:0;margin-bottom:0\"><span aria-hidden=\"true\" class=\"wp-block-cover__background has-palette-color-10-background-color has-background-dim-100 has-background-dim\"><\/span><div class=\"wp-block-cover__inner-container is-layout-constrained wp-block-cover-is-layout-constrained\">\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-28f84493 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column has-palette-color-8-color has-text-color has-link-color wp-elements-9b6fccb0e6177b001398e92c75fd4ecd is-layout-flow wp-block-column-is-layout-flow\" style=\"padding-top:var(--wp--preset--spacing--60);padding-right:var(--wp--preset--spacing--60);padding-bottom:var(--wp--preset--spacing--60);padding-left:var(--wp--preset--spacing--60)\">\n<h2 class=\"wp-block-heading has-palette-color-8-color has-text-color has-link-color wp-elements-d02ea409571c925af0c584ba2b464f69\" id=\"investigacion\">INVESTIGACI\u00d3N<\/h2>\n\n\n\n<p>La Fundaci\u00f3n Carter estableci\u00f3 un programa de investigaci\u00f3n de descubrimiento de f\u00e1rmacos y terapia g\u00e9nica para SPG3A en su primer a\u00f1o. Haz clic en el enlace de abajo para saber m\u00e1s.<\/p>\n\n\n\n<p>Instamos a todos a unirse al <a href=\"https:\/\/clinicaltrials.gov\/ct2\/show\/NCT04712812?cond=NCT04712812&amp;draw=2&amp;rank=1\" target=\"_blank\" rel=\"noreferrer noopener\"><strong>Estudio de Historia Natural de Paraplej\u00eda Esp\u00e1stica Hereditaria de Inicio Temprano (HSP)<\/strong><\/a> que ser\u00e1 el punto de partida de cualquier ensayo cl\u00ednico futuro. Por favor, env\u00eda un correo electr\u00f3nico directamente a la Coordinadora de Investigaci\u00f3n, Amy Tam, a amy.tam@childrens.harvard.edu para participar.<\/p>\n\n\n\n<div class=\"wp-block-group has-border-color has-palette-color-4-border-color is-layout-constrained wp-container-core-group-is-layout-f611be13 wp-block-group-is-layout-constrained\" style=\"border-width:1px;padding-top:var(--wp--preset--spacing--50);padding-right:var(--wp--preset--spacing--50);padding-bottom:var(--wp--preset--spacing--50);padding-left:var(--wp--preset--spacing--50)\">\n<p class=\"has-text-align-center\">Para saber m\u00e1s sobre el programa de investigaci\u00f3n de la Fundaci\u00f3n Carter para una cura para SPG3A y el Estudio de Historia Natural de HSP:<\/p>\n\n\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-a89b3969 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link wp-element-button\" href=\"https:\/\/www.kidswithspg3a.com\/research\" target=\"_blank\" rel=\"noreferrer noopener\">Haz Clic Aqu\u00ed<\/a><\/div>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-vertically-aligned-center is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"780\" src=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b6519a5c3b6febb6042b6_Rectangle-90-min-1024x780.png\" alt=\"\" class=\"wp-image-24\" title=\"\" srcset=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b6519a5c3b6febb6042b6_Rectangle-90-min-1024x780.png 1024w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b6519a5c3b6febb6042b6_Rectangle-90-min-300x229.png 300w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b6519a5c3b6febb6042b6_Rectangle-90-min-768x585.png 768w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b6519a5c3b6febb6042b6_Rectangle-90-min.png 1148w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/div>\n<\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-group alignfull has-palette-color-8-color has-palette-color-3-background-color has-text-color has-background has-link-color wp-elements-5baf6dbf91b09660d558f43cfba4899a is-layout-constrained wp-block-group-is-layout-constrained\" style=\"padding-top:var(--wp--preset--spacing--80);padding-bottom:var(--wp--preset--spacing--80)\">\n<h1 class=\"wp-block-heading has-text-align-center\" id=\"contactanos\">CONT\u00c1CTANOS<\/h1>\n\n\n\n<p class=\"has-text-align-center\">Por favor, \u00fanete a nuestra <a href=\"https:\/\/kids-with-spg3a.mn.co\/\" target=\"_blank\" rel=\"noreferrer noopener\">plataforma comunitaria<\/a> para que puedas mantenerte en contacto con otras familias con SPG3A y estar al d\u00eda con las \u00faltimas investigaciones.<\/p>\n\n\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-a89b3969 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-text-align-center wp-element-button\" href=\"https:\/\/kids-with-spg3a.mn.co\/\" target=\"_blank\" rel=\"noreferrer noopener\">\u00danete a Nuestra Comunidad<\/a><\/div>\n<\/div>\n\n\n\n<p class=\"has-text-align-center\">Si tienes alguna pregunta o sugerencia, por favor env\u00edanos un correo electr\u00f3nico a<br><a href=\"mailto:info@kidswithspg3a.com\">info@kidswithspg3a.com<\/a><\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>\u00bfQUI\u00c9NES SOMOS? Ni\u00f1os con SPG3A fue establecido por dos familias con ni\u00f1os peque\u00f1os que tienen paraplej\u00eda esp\u00e1stica tipo 3A. A Emily se le diagnostic\u00f3 SPG3A en 2020 cuando ten\u00eda 18 meses de edad.A Carter se le diagnostic\u00f3 par\u00e1lisis cerebral poco despu\u00e9s de no alcanzar los hitos motores del desarrollo cuando ten\u00eda seis meses. Su diagn\u00f3stico [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"ghostkit_customizer_options":"","ghostkit_custom_css":"","ghostkit_custom_js_head":"","ghostkit_custom_js_foot":"","ghostkit_typography":"","footnotes":""},"class_list":["post-6","page","type-page","status-publish","hentry"],"blocksy_meta":{"has_hero_section":"disabled","styles_descriptor":{"styles":{"desktop":"","tablet":"","mobile":""},"google_fonts":[],"version":6},"content_style_source":"inherit","vertical_spacing_source":"custom","content_area_spacing":"none","background":{"background_type":"color","background_pattern":"type-1","background_image":{"attachment_id":null,"x":0,"y":0},"gradient":"linear-gradient(135deg,rgba(6,147,227,1) 0%,rgb(155,81,224) 100%)","background_repeat":"repeat","background_size":"auto","background_attachment":"scroll","patternColor":{"default":{"color":"#e5e7ea"}},"overlayColor":{"default":{"color":"CT_CSS_SKIP_RULE"}},"backgroundColor":{"default":{"color":"CT_CSS_SKIP_RULE"}}}},"_links":{"self":[{"href":"https:\/\/kidswithspg3a.com\/es\/wp-json\/wp\/v2\/pages\/6","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/kidswithspg3a.com\/es\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/kidswithspg3a.com\/es\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/kidswithspg3a.com\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/kidswithspg3a.com\/es\/wp-json\/wp\/v2\/comments?post=6"}],"version-history":[{"count":90,"href":"https:\/\/kidswithspg3a.com\/es\/wp-json\/wp\/v2\/pages\/6\/revisions"}],"predecessor-version":[{"id":329,"href":"https:\/\/kidswithspg3a.com\/es\/wp-json\/wp\/v2\/pages\/6\/revisions\/329"}],"wp:attachment":[{"href":"https:\/\/kidswithspg3a.com\/es\/wp-json\/wp\/v2\/media?parent=6"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}