{"id":6,"date":"2025-04-28T16:31:33","date_gmt":"2025-04-28T16:31:33","guid":{"rendered":"https:\/\/kidswithspg3a.com\/?page_id=6"},"modified":"2025-05-15T14:49:36","modified_gmt":"2025-05-15T14:49:36","slug":"homepage","status":"publish","type":"page","link":"https:\/\/kidswithspg3a.com\/it\/","title":{"rendered":"Homepage"},"content":{"rendered":"<div class=\"wp-block-cover alignfull has-parallax\" style=\"border-top-style:none;border-top-width:0px;border-right-style:none;border-right-width:0px;border-bottom-color:var(--wp--preset--color--palette-color-2);border-bottom-width:5px;border-left-style:none;border-left-width:0px;margin-top:0;margin-bottom:0;min-height:100vh;aspect-ratio:unset;\"><div class=\"wp-block-cover__image-background wp-image-27 size-large has-parallax\" style=\"background-position:50% 50%;background-image:url(https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b651826c8978857d3dd25_Rectangle-72-min-1024x661.png)\"><\/div><span aria-hidden=\"true\" class=\"wp-block-cover__background has-background-dim-10 has-background-dim\" style=\"background-color:#5f80b6\"><\/span><div class=\"wp-block-cover__inner-container is-layout-constrained wp-block-cover-is-layout-constrained\">\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-28f84493 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\"><\/div>\n\n\n\n<div class=\"wp-block-column has-palette-color-8-color has-text-color has-background has-link-color wp-elements-978d3eb184dd912eea31116f09ce5bf6 is-layout-flow wp-block-column-is-layout-flow\" style=\"background-color:#302d30b8;padding-top:var(--wp--preset--spacing--60);padding-right:var(--wp--preset--spacing--60);padding-bottom:var(--wp--preset--spacing--60);padding-left:var(--wp--preset--spacing--60)\">\n<div class=\"wp-block-group is-content-justification-left is-layout-constrained wp-container-core-group-is-layout-12dd3699 wp-block-group-is-layout-constrained\">\n<figure class=\"wp-block-image size-full is-resized\"><img decoding=\"async\" src=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/kids-with-spg3a-white-text.svg\" alt=\"\" class=\"wp-image-31\" style=\"width:300px\" title=\"\"><\/figure>\n<\/div>\n\n\n\n<p>La nostra missione \u00e8 connettere i bambini con SPG3A con:<\/p>\n\n\n\n<ul class=\"wp-block-list is-style-icon ghostkit-custom-2sGPhk\">\n<li>gli altri, per condividere esperienze di vita, terapia e trattamento<\/li>\n\n\n\n<li>ricercatori, per aiutare nei loro sforzi per trovare una cura<\/li>\n<\/ul>\n\n\n\n<p>Ovunque tu sia nel mondo, <strong>unisciti alla nostra comunit\u00e0 <\/strong><strong>SPG3A<\/strong> per seguire le ultime ricerche.<br>\u200d<br>Quando si tratta di trovare una cura, la forza \u00e8 nei numeri!<\/p>\n\n\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button is-style-outline is-style-outline--8\"><a class=\"wp-block-button__link has-palette-color-8-color has-text-color has-link-color has-border-color has-palette-color-8-border-color wp-element-button\" href=\"https:\/\/kids-with-spg3a.mn.co\/\" target=\"_blank\" rel=\"noreferrer noopener\">Unisciti alla nostra comunit\u00e0<\/a><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-columns alignfull is-layout-flex wp-container-core-columns-is-layout-f0342b05 wp-block-columns-is-layout-flex\" style=\"margin-top:0;margin-bottom:0\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"987\" src=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f07ee5b9b5e8965ba5c63_2-1024x987.jpg\" alt=\"\" class=\"wp-image-22\" title=\"\" srcset=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f07ee5b9b5e8965ba5c63_2-1024x987.jpg 1024w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f07ee5b9b5e8965ba5c63_2-300x289.jpg 300w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f07ee5b9b5e8965ba5c63_2-768x740.jpg 768w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f07ee5b9b5e8965ba5c63_2-1536x1480.jpg 1536w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f07ee5b9b5e8965ba5c63_2-2048x1973.jpg 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"987\" src=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f062e4caf383bfc0d53b1_3-1024x987.jpg\" alt=\"\" class=\"wp-image-28\" title=\"\" srcset=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f062e4caf383bfc0d53b1_3-1024x987.jpg 1024w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f062e4caf383bfc0d53b1_3-300x289.jpg 300w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f062e4caf383bfc0d53b1_3-768x740.jpg 768w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f062e4caf383bfc0d53b1_3-1536x1480.jpg 1536w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f062e4caf383bfc0d53b1_3-2048x1973.jpg 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-55a13620 wp-block-columns-is-layout-flex\" style=\"margin-top:-200px;margin-bottom:-100px\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:10%\"><\/div>\n\n\n\n<div class=\"wp-block-column zindex has-palette-color-9-background-color has-background is-layout-flow wp-block-column-is-layout-flow\" style=\"padding-top:var(--wp--preset--spacing--60);padding-right:var(--wp--preset--spacing--60);padding-bottom:var(--wp--preset--spacing--60);padding-left:var(--wp--preset--spacing--60);box-shadow:var(--wp--preset--shadow--crisp);flex-basis:80%\" id=\"about\">\n<h2 class=\"wp-block-heading has-text-align-center\" id=\"chi-siamo\">CHI SIAMO?<\/h2>\n\n\n\n<p class=\"has-text-align-center\">Bambini con SPG3A \u00e8 stato fondato da due famiglie con bambini piccoli affetti da paraplegia spastica di tipo 3A.<\/p>\n\n\n\n<p class=\"has-text-align-center\">A Emily \u00e8 stata diagnosticata la SPG3A nel 2020, quando aveva 18 mesi.<br>A Carter \u00e8 stata diagnosticata una paralisi cerebrale poco dopo aver mancato tappe motorie dello sviluppo a sei mesi. La sua diagnosi \u00e8 stata rivista come SPG3A a 5 anni, dopo test genetici presso l&#8217;Ospedale Pediatrico di Boston.<br>Sia Carter che Emily hanno varianti &#8220;de novo&#8221;, non ereditate dai genitori, e i loro sintomi sono complessi, interessando non solo le gambe ma anche gli arti superiori e i muscoli orali.<\/p>\n\n\n\n<p class=\"has-text-align-center\">Il nonno di Carter, <a href=\"https:\/\/en.wikipedia.org\/wiki\/Joseph_Avellone\" target=\"_blank\" rel=\"noreferrer noopener\">Joseph Avellone, MD<\/a>, ha una vasta esperienza nel settore della salute e della biomedicina.<br>Ha fondato la Fondazione Carter per la Ricerca Neurologica per finanziare ricerche sulle<br>cause e il trattamento di malattie neurologiche rare nei bambini. <a href=\"https:\/\/www.massgeneral.org\/doctors\/21073\/craig-blackstone\" target=\"_blank\" rel=\"noreferrer noopener\">Dr. Craig Blackstone<\/a>, Capo dei Disturbi del Movimento, Dipartimento di Neurologia, Massachusetts General Hospital, \u00e8 il Consulente Scientifico Senior della Fondazione ed \u00e8 un eminente scienziato ricercatore con un focus a lungo termine sulle paraplegie spastiche ereditarie.<\/p>\n\n\n\n<p class=\"has-text-align-center\">Le due famiglie lavorano a stretto contatto con i ricercatori e condivideranno gli aggiornamenti della ricerca con altre famiglie sulla <a href=\"https:\/\/kids-with-spg3a.mn.co\/\" target=\"_blank\" rel=\"noreferrer noopener\">Piattaforma della Comunit\u00e0 Bambini con SPG3A<\/a>.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:10%\"><\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-cover alignfull has-parallax\" style=\"margin-top:0;margin-bottom:0;padding-top:var(--wp--preset--spacing--80);padding-bottom:var(--wp--preset--spacing--80)\"><div class=\"wp-block-cover__image-background wp-image-25 size-large has-parallax\" style=\"background-position:50% 50%;background-image:url(https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b6515ae143150e06c4365_Rectangle-10-min-1024x693.png)\"><\/div><span aria-hidden=\"true\" class=\"wp-block-cover__background has-background-dim-20 has-background-dim\" style=\"background-color:#0d527d\"><\/span><div class=\"wp-block-cover__inner-container is-layout-constrained wp-block-cover-is-layout-constrained\">\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-4c1dd492 wp-block-columns-is-layout-flex\" style=\"margin-top:var(--wp--preset--spacing--80);margin-bottom:var(--wp--preset--spacing--80)\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:15%\"><\/div>\n\n\n\n<div class=\"wp-block-column has-palette-color-8-color has-text-color has-link-color wp-elements-dc5cdf45016794c983dceca2cb85b362 is-layout-flow wp-block-column-is-layout-flow\" style=\"padding-top:var(--wp--preset--spacing--60);padding-right:var(--wp--preset--spacing--60);padding-bottom:var(--wp--preset--spacing--60);padding-left:var(--wp--preset--spacing--60)\">\n<div class=\"wp-block-group is-content-justification-left is-layout-constrained wp-container-core-group-is-layout-12dd3699 wp-block-group-is-layout-constrained\">\n<h2 class=\"wp-block-heading has-text-align-center\" id=\"cos-e-spg3a\">COS&#8217;\u00c8 SPG3A?<\/h2>\n<\/div>\n\n\n\n<p class=\"has-text-align-center\">SPG3A \u00e8 il tipo pi\u00f9 comune di HSP, o paraplegia spastica ereditaria, nei bambini.<br>Il sintomo principale dell&#8217;HSP \u00e8 la difficolt\u00e0 a camminare a causa di muscoli delle gambe tesi (spastici) e deboli.<br>Alcuni pazienti presentano sintomi pi\u00f9 complessi che colpiscono altre parti del corpo.<br>La gravit\u00e0 dei sintomi di solito peggiora con il tempo.<\/p>\n\n\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-a89b3969 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button is-style-fill\"><a class=\"wp-block-button__link has-text-align-center wp-element-button\" href=\"https:\/\/kidswithspg3a.com\/about-spg3a\/\">Scopri di pi\u00f9<\/a><\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:15%\"><\/div>\n<\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-cover alignfull\" style=\"margin-top:0;margin-bottom:0\"><span aria-hidden=\"true\" class=\"wp-block-cover__background has-palette-color-10-background-color has-background-dim-100 has-background-dim\"><\/span><div class=\"wp-block-cover__inner-container is-layout-constrained wp-block-cover-is-layout-constrained\">\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-28f84493 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column has-palette-color-8-color has-text-color has-link-color wp-elements-a9f0538b9cf64d8fbfdc8b5fbea2b734 is-layout-flow wp-block-column-is-layout-flow\" style=\"padding-top:var(--wp--preset--spacing--60);padding-right:var(--wp--preset--spacing--60);padding-bottom:var(--wp--preset--spacing--60);padding-left:var(--wp--preset--spacing--60)\">\n<h2 class=\"wp-block-heading has-palette-color-8-color has-text-color has-link-color wp-elements-77f2dd03d7b604aeb8cf8071c488d4ad\" id=\"ricerca\">RICERCA<\/h2>\n\n\n\n<p>La Fondazione Carter ha istituito un programma di scoperta di farmaci e terapia genica per SPG3A nel suo primo anno. Clicca sul link qui sotto per saperne di pi\u00f9.<\/p>\n\n\n\n<p>Esortiamo tutti a partecipare allo <a href=\"https:\/\/clinicaltrials.gov\/ct2\/show\/NCT04712812?cond=NCT04712812&amp;draw=2&amp;rank=1\" target=\"_blank\" rel=\"noreferrer noopener\"><strong>Studio sulla Storia Naturale della Paraplegia Spastica Ereditaria a Esordio Precoce (HSP)<\/strong><\/a>, che sar\u00e0 il punto di partenza per eventuali futuri studi clinici. Si prega di contattare direttamente la coordinatrice della ricerca, Amy Tam, all&#8217;indirizzo amy.tam@childrens.harvard.edu per partecipare.<\/p>\n\n\n\n<div class=\"wp-block-group has-border-color has-palette-color-4-border-color is-layout-constrained wp-container-core-group-is-layout-f611be13 wp-block-group-is-layout-constrained\" style=\"border-width:1px;padding-top:var(--wp--preset--spacing--50);padding-right:var(--wp--preset--spacing--50);padding-bottom:var(--wp--preset--spacing--50);padding-left:var(--wp--preset--spacing--50)\">\n<p class=\"has-text-align-center\">Per saperne di pi\u00f9 sul programma di ricerca della Fondazione Carter per una cura per SPG3A e sullo Studio sulla Storia Naturale dell&#8217;HSP:<\/p>\n\n\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-a89b3969 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link wp-element-button\" href=\"https:\/\/www.kidswithspg3a.com\/research\" target=\"_blank\" rel=\"noreferrer noopener\">Clicca qui<\/a><\/div>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-vertically-aligned-center is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"780\" src=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b6519a5c3b6febb6042b6_Rectangle-90-min-1024x780.png\" alt=\"\" class=\"wp-image-24\" title=\"\" srcset=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b6519a5c3b6febb6042b6_Rectangle-90-min-1024x780.png 1024w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b6519a5c3b6febb6042b6_Rectangle-90-min-300x229.png 300w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b6519a5c3b6febb6042b6_Rectangle-90-min-768x585.png 768w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b6519a5c3b6febb6042b6_Rectangle-90-min.png 1148w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/div>\n<\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-group alignfull has-palette-color-8-color has-palette-color-3-background-color has-text-color has-background has-link-color wp-elements-7c0775f1378d31198c48c2bc38dff484 is-layout-constrained wp-block-group-is-layout-constrained\" style=\"padding-top:var(--wp--preset--spacing--80);padding-bottom:var(--wp--preset--spacing--80)\">\n<h1 class=\"wp-block-heading has-text-align-center\" id=\"contattaci\">CONTATTACI<\/h1>\n\n\n\n<p class=\"has-text-align-center\">Unisciti alla nostra <a href=\"https:\/\/kids-with-spg3a.mn.co\/\" target=\"_blank\" rel=\"noreferrer noopener\">piattaforma della comunit\u00e0<\/a> per rimanere in contatto con altre famiglie con SPG3A e tenerti aggiornato sulle ultime ricerche.<\/p>\n\n\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-a89b3969 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-text-align-center wp-element-button\" href=\"https:\/\/kids-with-spg3a.mn.co\/\" target=\"_blank\" rel=\"noreferrer noopener\">Unisciti alla nostra comunit\u00e0<\/a><\/div>\n<\/div>\n\n\n\n<p class=\"has-text-align-center\">Se hai domande o suggerimenti, inviaci un&#8217;e-mail a<br><a href=\"mailto:info@kidswithspg3a.com\">info@kidswithspg3a.com<\/a><\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>CHI SIAMO? Bambini con SPG3A \u00e8 stato fondato da due famiglie con bambini piccoli affetti da paraplegia spastica di tipo 3A. A Emily \u00e8 stata diagnosticata la SPG3A nel 2020, quando aveva 18 mesi.A Carter \u00e8 stata diagnosticata una paralisi cerebrale poco dopo aver mancato tappe motorie dello sviluppo a sei mesi. La sua diagnosi [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"ghostkit_customizer_options":"","ghostkit_custom_css":"","ghostkit_custom_js_head":"","ghostkit_custom_js_foot":"","ghostkit_typography":"","footnotes":""},"class_list":["post-6","page","type-page","status-publish","hentry"],"blocksy_meta":{"has_hero_section":"disabled","styles_descriptor":{"styles":{"desktop":"","tablet":"","mobile":""},"google_fonts":[],"version":6},"content_style_source":"inherit","vertical_spacing_source":"custom","content_area_spacing":"none","background":{"background_type":"color","background_pattern":"type-1","background_image":{"attachment_id":null,"x":0,"y":0},"gradient":"linear-gradient(135deg,rgba(6,147,227,1) 0%,rgb(155,81,224) 100%)","background_repeat":"repeat","background_size":"auto","background_attachment":"scroll","patternColor":{"default":{"color":"#e5e7ea"}},"overlayColor":{"default":{"color":"CT_CSS_SKIP_RULE"}},"backgroundColor":{"default":{"color":"CT_CSS_SKIP_RULE"}}}},"_links":{"self":[{"href":"https:\/\/kidswithspg3a.com\/it\/wp-json\/wp\/v2\/pages\/6","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/kidswithspg3a.com\/it\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/kidswithspg3a.com\/it\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/kidswithspg3a.com\/it\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/kidswithspg3a.com\/it\/wp-json\/wp\/v2\/comments?post=6"}],"version-history":[{"count":90,"href":"https:\/\/kidswithspg3a.com\/it\/wp-json\/wp\/v2\/pages\/6\/revisions"}],"predecessor-version":[{"id":329,"href":"https:\/\/kidswithspg3a.com\/it\/wp-json\/wp\/v2\/pages\/6\/revisions\/329"}],"wp:attachment":[{"href":"https:\/\/kidswithspg3a.com\/it\/wp-json\/wp\/v2\/media?parent=6"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}