{"id":6,"date":"2025-04-28T16:31:33","date_gmt":"2025-04-28T16:31:33","guid":{"rendered":"https:\/\/kidswithspg3a.com\/?page_id=6"},"modified":"2025-05-15T14:49:36","modified_gmt":"2025-05-15T14:49:36","slug":"homepage","status":"publish","type":"page","link":"https:\/\/kidswithspg3a.com\/pb\/","title":{"rendered":"P\u00e1gina inicial"},"content":{"rendered":"<div class=\"wp-block-cover alignfull has-parallax\" style=\"border-top-style:none;border-top-width:0px;border-right-style:none;border-right-width:0px;border-bottom-color:var(--wp--preset--color--palette-color-2);border-bottom-width:5px;border-left-style:none;border-left-width:0px;margin-top:0;margin-bottom:0;min-height:100vh;aspect-ratio:unset;\"><div class=\"wp-block-cover__image-background wp-image-27 size-large has-parallax\" style=\"background-position:50% 50%;background-image:url(https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b651826c8978857d3dd25_Rectangle-72-min-1024x661.png)\"><\/div><span aria-hidden=\"true\" class=\"wp-block-cover__background has-background-dim-10 has-background-dim\" style=\"background-color:#5f80b6\"><\/span><div class=\"wp-block-cover__inner-container is-layout-constrained wp-block-cover-is-layout-constrained\">\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-28f84493 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\"><\/div>\n\n\n\n<div class=\"wp-block-column has-palette-color-8-color has-text-color has-background has-link-color wp-elements-a32c8a64cd6a60b317999ce507b1500f is-layout-flow wp-block-column-is-layout-flow\" style=\"background-color:#302d30b8;padding-top:var(--wp--preset--spacing--60);padding-right:var(--wp--preset--spacing--60);padding-bottom:var(--wp--preset--spacing--60);padding-left:var(--wp--preset--spacing--60)\">\n<div class=\"wp-block-group is-content-justification-left is-layout-constrained wp-container-core-group-is-layout-12dd3699 wp-block-group-is-layout-constrained\">\n<figure class=\"wp-block-image size-full is-resized\"><img decoding=\"async\" src=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/kids-with-spg3a-white-text.svg\" alt=\"\" class=\"wp-image-31\" style=\"width:300px\" title=\"\"><\/figure>\n<\/div>\n\n\n\n<p>Nossa miss\u00e3o \u00e9 conectar crian\u00e7as com SPG3A com:<\/p>\n\n\n\n<ul class=\"wp-block-list is-style-icon ghostkit-custom-2sGPhk\">\n<li>uns com os outros, para compartilhar experi\u00eancias de vida, terapia e tratamento<\/li>\n\n\n\n<li>pesquisadores, para ajudar em seus esfor\u00e7os para encontrar uma cura<\/li>\n<\/ul>\n\n\n\n<p>Onde quer que voc\u00ea esteja no mundo, <strong>por favor, junte-se \u00e0 nossa comunidade <\/strong><strong>SPG3A<\/strong> para acompanhar as \u00faltimas pesquisas.<br>\u200d<br>Quando se trata de encontrar uma cura, a for\u00e7a est\u00e1 nos n\u00fameros!<\/p>\n\n\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button is-style-outline is-style-outline--11\"><a class=\"wp-block-button__link has-palette-color-8-color has-text-color has-link-color has-border-color has-palette-color-8-border-color wp-element-button\" href=\"https:\/\/kids-with-spg3a.mn.co\/\" target=\"_blank\" rel=\"noreferrer noopener\">Junte-se \u00e0 nossa comunidade<\/a><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-columns alignfull is-layout-flex wp-container-core-columns-is-layout-f0342b05 wp-block-columns-is-layout-flex\" style=\"margin-top:0;margin-bottom:0\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"987\" src=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f07ee5b9b5e8965ba5c63_2-1024x987.jpg\" alt=\"\" class=\"wp-image-22\" title=\"\" srcset=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f07ee5b9b5e8965ba5c63_2-1024x987.jpg 1024w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f07ee5b9b5e8965ba5c63_2-300x289.jpg 300w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f07ee5b9b5e8965ba5c63_2-768x740.jpg 768w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f07ee5b9b5e8965ba5c63_2-1536x1480.jpg 1536w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f07ee5b9b5e8965ba5c63_2-2048x1973.jpg 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"987\" src=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f062e4caf383bfc0d53b1_3-1024x987.jpg\" alt=\"\" class=\"wp-image-28\" title=\"\" srcset=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f062e4caf383bfc0d53b1_3-1024x987.jpg 1024w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f062e4caf383bfc0d53b1_3-300x289.jpg 300w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f062e4caf383bfc0d53b1_3-768x740.jpg 768w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f062e4caf383bfc0d53b1_3-1536x1480.jpg 1536w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f062e4caf383bfc0d53b1_3-2048x1973.jpg 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-55a13620 wp-block-columns-is-layout-flex\" style=\"margin-top:-200px;margin-bottom:-100px\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:10%\"><\/div>\n\n\n\n<div class=\"wp-block-column zindex has-palette-color-9-background-color has-background is-layout-flow wp-block-column-is-layout-flow\" style=\"padding-top:var(--wp--preset--spacing--60);padding-right:var(--wp--preset--spacing--60);padding-bottom:var(--wp--preset--spacing--60);padding-left:var(--wp--preset--spacing--60);box-shadow:var(--wp--preset--shadow--crisp);flex-basis:80%\" id=\"about\">\n<h2 class=\"wp-block-heading has-text-align-center\" id=\"quem-somos\">QUEM SOMOS?<\/h2>\n\n\n\n<p class=\"has-text-align-center\">Crian\u00e7as com SPG3A foi fundado por duas fam\u00edlias com crian\u00e7as pequenas que t\u00eam paraplegia esp\u00e1stica tipo 3A.<\/p>\n\n\n\n<p class=\"has-text-align-center\">Emily foi diagnosticada com SPG3A em 2020, quando tinha 18 meses.<br>Carter foi diagnosticado com paralisia cerebral logo ap\u00f3s n\u00e3o atingir marcos motores de desenvolvimento aos seis meses. Seu diagn\u00f3stico foi revisado para SPG3A aos 5 anos, ap\u00f3s testes gen\u00e9ticos no Hospital Infantil de Boston.<br>Tanto Carter quanto Emily t\u00eam variantes &#8220;de novo&#8221;, n\u00e3o herdadas de seus pais, e seus sintomas s\u00e3o complexos, afetando n\u00e3o apenas as pernas, mas tamb\u00e9m os membros superiores e os m\u00fasculos orais.<\/p>\n\n\n\n<p class=\"has-text-align-center\">O av\u00f4 de Carter, <a href=\"https:\/\/en.wikipedia.org\/wiki\/Joseph_Avellone\" target=\"_blank\" rel=\"noreferrer noopener\">Joseph Avellone, MD<\/a>, tem vasta experi\u00eancia na ind\u00fastria de sa\u00fade e biomedicina.<br>Ele fundou a Funda\u00e7\u00e3o Carter para Pesquisa Neurol\u00f3gica para financiar pesquisas sobre<br>as causas e o tratamento de doen\u00e7as neurol\u00f3gicas raras em crian\u00e7as. <a href=\"https:\/\/www.massgeneral.org\/doctors\/21073\/craig-blackstone\" target=\"_blank\" rel=\"noreferrer noopener\">Dr. Craig Blackstone<\/a>, Chefe de Dist\u00farbios do Movimento, Departamento de Neurologia, Massachusetts General Hospital, \u00e9 o Consultor Cient\u00edfico S\u00eanior da Funda\u00e7\u00e3o e um cientista de pesquisa proeminente com foco de longo prazo nas paraplegias esp\u00e1sticas heredit\u00e1rias.<\/p>\n\n\n\n<p class=\"has-text-align-center\">As duas fam\u00edlias trabalham em estreita colabora\u00e7\u00e3o com pesquisadores e compartilhar\u00e3o atualiza\u00e7\u00f5es de pesquisa com outras fam\u00edlias na <a href=\"https:\/\/kids-with-spg3a.mn.co\/\" target=\"_blank\" rel=\"noreferrer noopener\">Plataforma da Comunidade Crian\u00e7as com SPG3A<\/a>.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:10%\"><\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-cover alignfull has-parallax\" style=\"margin-top:0;margin-bottom:0;padding-top:var(--wp--preset--spacing--80);padding-bottom:var(--wp--preset--spacing--80)\"><div class=\"wp-block-cover__image-background wp-image-25 size-large has-parallax\" style=\"background-position:50% 50%;background-image:url(https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b6515ae143150e06c4365_Rectangle-10-min-1024x693.png)\"><\/div><span aria-hidden=\"true\" class=\"wp-block-cover__background has-background-dim-20 has-background-dim\" style=\"background-color:#0d527d\"><\/span><div class=\"wp-block-cover__inner-container is-layout-constrained wp-block-cover-is-layout-constrained\">\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-4c1dd492 wp-block-columns-is-layout-flex\" style=\"margin-top:var(--wp--preset--spacing--80);margin-bottom:var(--wp--preset--spacing--80)\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:15%\"><\/div>\n\n\n\n<div class=\"wp-block-column has-palette-color-8-color has-text-color has-link-color wp-elements-afef60e342ea49d63971f9fbc4aceb4f is-layout-flow wp-block-column-is-layout-flow\" style=\"padding-top:var(--wp--preset--spacing--60);padding-right:var(--wp--preset--spacing--60);padding-bottom:var(--wp--preset--spacing--60);padding-left:var(--wp--preset--spacing--60)\">\n<div class=\"wp-block-group is-content-justification-left is-layout-constrained wp-container-core-group-is-layout-12dd3699 wp-block-group-is-layout-constrained\">\n<h2 class=\"wp-block-heading has-text-align-center\" id=\"o-que-e-spg3a\">O QUE \u00c9 SPG3A?<\/h2>\n<\/div>\n\n\n\n<p class=\"has-text-align-center\">SPG3A \u00e9 o tipo mais comum de HSP, ou Paraplegia Esp\u00e1stica Heredit\u00e1ria, em crian\u00e7as.<br>O principal sintoma da HSP \u00e9 a dificuldade para caminhar devido a m\u00fasculos das pernas tensos (esp\u00e1sticos) e fracos.<br>Alguns pacientes apresentam sintomas mais complexos que afetam outras \u00e1reas do corpo.<br>A gravidade dos sintomas geralmente piora com o tempo.<\/p>\n\n\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-a89b3969 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button is-style-fill\"><a class=\"wp-block-button__link has-text-align-center wp-element-button\" href=\"https:\/\/kidswithspg3a.com\/about-spg3a\/\">Saiba mais<\/a><\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:15%\"><\/div>\n<\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-cover alignfull\" style=\"margin-top:0;margin-bottom:0\"><span aria-hidden=\"true\" class=\"wp-block-cover__background has-palette-color-10-background-color has-background-dim-100 has-background-dim\"><\/span><div class=\"wp-block-cover__inner-container is-layout-constrained wp-block-cover-is-layout-constrained\">\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-28f84493 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column has-palette-color-8-color has-text-color has-link-color wp-elements-f548363d435737c880f66708981d3875 is-layout-flow wp-block-column-is-layout-flow\" style=\"padding-top:var(--wp--preset--spacing--60);padding-right:var(--wp--preset--spacing--60);padding-bottom:var(--wp--preset--spacing--60);padding-left:var(--wp--preset--spacing--60)\">\n<h2 class=\"wp-block-heading has-palette-color-8-color has-text-color has-link-color wp-elements-cf39dd3a4807eebdac4b8ec789ad8e98\" id=\"pesquisa\">PESQUISA<\/h2>\n\n\n\n<p>A Funda\u00e7\u00e3o Carter estabeleceu um programa de descoberta de medicamentos e terapia gen\u00e9tica para SPG3A em seu primeiro ano. Clique no link abaixo para saber mais.<\/p>\n\n\n\n<p>Encorajamos todos a participar do <a href=\"https:\/\/clinicaltrials.gov\/ct2\/show\/NCT04712812?cond=NCT04712812&amp;draw=2&amp;rank=1\" target=\"_blank\" rel=\"noreferrer noopener\"><strong>Estudo de Hist\u00f3ria Natural da Paraplegia Esp\u00e1stica Heredit\u00e1ria de In\u00edcio Precoce (HSP)<\/strong><\/a>, que ser\u00e1 o ponto de partida para quaisquer ensaios cl\u00ednicos futuros. Por favor, envie um e-mail diretamente para a Coordenadora de Pesquisa, Amy Tam, em amy.tam@childrens.harvard.edu para participar.<\/p>\n\n\n\n<div class=\"wp-block-group has-border-color has-palette-color-4-border-color is-layout-constrained wp-container-core-group-is-layout-f611be13 wp-block-group-is-layout-constrained\" style=\"border-width:1px;padding-top:var(--wp--preset--spacing--50);padding-right:var(--wp--preset--spacing--50);padding-bottom:var(--wp--preset--spacing--50);padding-left:var(--wp--preset--spacing--50)\">\n<p class=\"has-text-align-center\">Para saber mais sobre o programa de pesquisa da Funda\u00e7\u00e3o Carter para uma cura para SPG3A e o Estudo de Hist\u00f3ria Natural da HSP:<\/p>\n\n\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-a89b3969 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link wp-element-button\" href=\"https:\/\/www.kidswithspg3a.com\/research\" target=\"_blank\" rel=\"noreferrer noopener\">Clique aqui<\/a><\/div>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-vertically-aligned-center is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"780\" src=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b6519a5c3b6febb6042b6_Rectangle-90-min-1024x780.png\" alt=\"\" class=\"wp-image-24\" title=\"\" srcset=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b6519a5c3b6febb6042b6_Rectangle-90-min-1024x780.png 1024w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b6519a5c3b6febb6042b6_Rectangle-90-min-300x229.png 300w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b6519a5c3b6febb6042b6_Rectangle-90-min-768x585.png 768w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b6519a5c3b6febb6042b6_Rectangle-90-min.png 1148w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/div>\n<\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-group alignfull has-palette-color-8-color has-palette-color-3-background-color has-text-color has-background has-link-color wp-elements-23135b38cdb596f4c090443a84925b62 is-layout-constrained wp-block-group-is-layout-constrained\" style=\"padding-top:var(--wp--preset--spacing--80);padding-bottom:var(--wp--preset--spacing--80)\">\n<h1 class=\"wp-block-heading has-text-align-center\" id=\"fale-conosco\">FALE CONOSCO<\/h1>\n\n\n\n<p class=\"has-text-align-center\">Por favor, junte-se \u00e0 nossa <a href=\"https:\/\/kids-with-spg3a.mn.co\/\" target=\"_blank\" rel=\"noreferrer noopener\">plataforma da comunidade<\/a> para que voc\u00ea possa manter contato com outras fam\u00edlias com SPG3A e ficar atualizado sobre as \u00faltimas pesquisas.<\/p>\n\n\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-a89b3969 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-text-align-center wp-element-button\" href=\"https:\/\/kids-with-spg3a.mn.co\/\" target=\"_blank\" rel=\"noreferrer noopener\">Junte-se \u00e0 nossa comunidade<\/a><\/div>\n<\/div>\n\n\n\n<p class=\"has-text-align-center\">Se voc\u00ea tiver alguma d\u00favida ou sugest\u00e3o, por favor, envie-nos um e-mail em<br><a href=\"mailto:info@kidswithspg3a.com\">info@kidswithspg3a.com<\/a><\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>QUEM SOMOS? Crian\u00e7as com SPG3A foi fundado por duas fam\u00edlias com crian\u00e7as pequenas que t\u00eam paraplegia esp\u00e1stica tipo 3A. Emily foi diagnosticada com SPG3A em 2020, quando tinha 18 meses.Carter foi diagnosticado com paralisia cerebral logo ap\u00f3s n\u00e3o atingir marcos motores de desenvolvimento aos seis meses. Seu diagn\u00f3stico foi revisado para SPG3A aos 5 anos, [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"ghostkit_customizer_options":"","ghostkit_custom_css":"","ghostkit_custom_js_head":"","ghostkit_custom_js_foot":"","ghostkit_typography":"","footnotes":""},"class_list":["post-6","page","type-page","status-publish","hentry"],"blocksy_meta":{"has_hero_section":"disabled","styles_descriptor":{"styles":{"desktop":"","tablet":"","mobile":""},"google_fonts":[],"version":6},"content_style_source":"inherit","vertical_spacing_source":"custom","content_area_spacing":"none","background":{"background_type":"color","background_pattern":"type-1","background_image":{"attachment_id":null,"x":0,"y":0},"gradient":"linear-gradient(135deg,rgba(6,147,227,1) 0%,rgb(155,81,224) 100%)","background_repeat":"repeat","background_size":"auto","background_attachment":"scroll","patternColor":{"default":{"color":"#e5e7ea"}},"overlayColor":{"default":{"color":"CT_CSS_SKIP_RULE"}},"backgroundColor":{"default":{"color":"CT_CSS_SKIP_RULE"}}}},"_links":{"self":[{"href":"https:\/\/kidswithspg3a.com\/pb\/wp-json\/wp\/v2\/pages\/6","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/kidswithspg3a.com\/pb\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/kidswithspg3a.com\/pb\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/kidswithspg3a.com\/pb\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/kidswithspg3a.com\/pb\/wp-json\/wp\/v2\/comments?post=6"}],"version-history":[{"count":90,"href":"https:\/\/kidswithspg3a.com\/pb\/wp-json\/wp\/v2\/pages\/6\/revisions"}],"predecessor-version":[{"id":329,"href":"https:\/\/kidswithspg3a.com\/pb\/wp-json\/wp\/v2\/pages\/6\/revisions\/329"}],"wp:attachment":[{"href":"https:\/\/kidswithspg3a.com\/pb\/wp-json\/wp\/v2\/media?parent=6"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}