{"id":6,"date":"2025-04-28T16:31:33","date_gmt":"2025-04-28T16:31:33","guid":{"rendered":"https:\/\/kidswithspg3a.com\/?page_id=6"},"modified":"2025-05-15T14:49:36","modified_gmt":"2025-05-15T14:49:36","slug":"homepage","status":"publish","type":"page","link":"https:\/\/kidswithspg3a.com\/zh\/","title":{"rendered":"\u4e3b\u9875"},"content":{"rendered":"<div class=\"wp-block-cover alignfull has-parallax\" style=\"border-top-style:none;border-top-width:0px;border-right-style:none;border-right-width:0px;border-bottom-color:var(--wp--preset--color--palette-color-2);border-bottom-width:5px;border-left-style:none;border-left-width:0px;margin-top:0;margin-bottom:0;min-height:100vh;aspect-ratio:unset;\"><div class=\"wp-block-cover__image-background wp-image-27 size-large has-parallax\" style=\"background-position:50% 50%;background-image:url(https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b651826c8978857d3dd25_Rectangle-72-min-1024x661.png)\"><\/div><span aria-hidden=\"true\" class=\"wp-block-cover__background has-background-dim-10 has-background-dim\" style=\"background-color:#5f80b6\"><\/span><div class=\"wp-block-cover__inner-container is-layout-constrained wp-block-cover-is-layout-constrained\">\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-28f84493 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\"><\/div>\n\n\n\n<div class=\"wp-block-column has-palette-color-8-color has-text-color has-background has-link-color wp-elements-3c838a80753dc1a3f20beb9118cdd29a is-layout-flow wp-block-column-is-layout-flow\" style=\"background-color:#302d30b8;padding-top:var(--wp--preset--spacing--60);padding-right:var(--wp--preset--spacing--60);padding-bottom:var(--wp--preset--spacing--60);padding-left:var(--wp--preset--spacing--60)\">\n<div class=\"wp-block-group is-content-justification-left is-layout-constrained wp-container-core-group-is-layout-12dd3699 wp-block-group-is-layout-constrained\">\n<figure class=\"wp-block-image size-full is-resized\"><img decoding=\"async\" src=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/kids-with-spg3a-white-text.svg\" alt=\"\" class=\"wp-image-31\" style=\"width:300px\" title=\"\"><\/figure>\n<\/div>\n\n\n\n<p>\u6211\u4eec\u7684\u4f7f\u547d\u662f\u5c06\u60a3\u6709SPG3A\u7684\u513f\u7ae5\u4e0e\u4ee5\u4e0b\u65b9\u9762\u8fde\u63a5\u8d77\u6765\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list is-style-icon ghostkit-custom-2sGPhk\">\n<li>\u5f7c\u6b64\u5206\u4eab\u751f\u6d3b\u3001\u6cbb\u7597\u548c\u6cbb\u7597\u7ecf\u9a8c<\/li>\n\n\n\n<li>\u7814\u7a76\u4eba\u5458\uff0c\u4ee5\u5e2e\u52a9\u4ed6\u4eec\u5bfb\u627e\u6cbb\u6108\u65b9\u6cd5\u7684\u52aa\u529b<\/li>\n<\/ul>\n\n\n\n<p>\u65e0\u8bba\u60a8\u8eab\u5904\u4e16\u754c\u4f55\u5730\uff0c<strong>\u8bf7\u52a0\u5165\u6211\u4eec\u7684<\/strong><strong>SPG3A<\/strong><strong>\u793e\u533a<\/strong>\uff0c\u4ee5\u5173\u6ce8\u6700\u65b0\u7684\u7814\u7a76\u8fdb\u5c55\u3002<br>\u200d<br>\u5728\u5bfb\u627e\u6cbb\u6108\u65b9\u6cd5\u65f6\uff0c\u4eba\u6570\u5c31\u662f\u529b\u91cf\uff01<\/p>\n\n\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button is-style-outline is-style-outline--3\"><a class=\"wp-block-button__link has-palette-color-8-color has-text-color has-link-color has-border-color has-palette-color-8-border-color wp-element-button\" href=\"https:\/\/kids-with-spg3a.mn.co\/\" target=\"_blank\" rel=\"noreferrer noopener\">\u52a0\u5165\u6211\u4eec\u7684\u793e\u533a<\/a><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-columns alignfull is-layout-flex wp-container-core-columns-is-layout-f0342b05 wp-block-columns-is-layout-flex\" style=\"margin-top:0;margin-bottom:0\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"987\" src=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f07ee5b9b5e8965ba5c63_2-1024x987.jpg\" alt=\"\" class=\"wp-image-22\" title=\"\" srcset=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f07ee5b9b5e8965ba5c63_2-1024x987.jpg 1024w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f07ee5b9b5e8965ba5c63_2-300x289.jpg 300w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f07ee5b9b5e8965ba5c63_2-768x740.jpg 768w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f07ee5b9b5e8965ba5c63_2-1536x1480.jpg 1536w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f07ee5b9b5e8965ba5c63_2-2048x1973.jpg 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"987\" src=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f062e4caf383bfc0d53b1_3-1024x987.jpg\" alt=\"\" class=\"wp-image-28\" title=\"\" srcset=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f062e4caf383bfc0d53b1_3-1024x987.jpg 1024w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f062e4caf383bfc0d53b1_3-300x289.jpg 300w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f062e4caf383bfc0d53b1_3-768x740.jpg 768w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f062e4caf383bfc0d53b1_3-1536x1480.jpg 1536w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/637f062e4caf383bfc0d53b1_3-2048x1973.jpg 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-55a13620 wp-block-columns-is-layout-flex\" style=\"margin-top:-200px;margin-bottom:-100px\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:10%\"><\/div>\n\n\n\n<div class=\"wp-block-column zindex has-palette-color-9-background-color has-background is-layout-flow wp-block-column-is-layout-flow\" style=\"padding-top:var(--wp--preset--spacing--60);padding-right:var(--wp--preset--spacing--60);padding-bottom:var(--wp--preset--spacing--60);padding-left:var(--wp--preset--spacing--60);box-shadow:var(--wp--preset--shadow--crisp);flex-basis:80%\" id=\"about\">\n<h2 class=\"wp-block-heading has-text-align-center\" id=\"\u6211\u4eec\u662f\u8c01\">\u6211\u4eec\u662f\u8c01\uff1f<\/h2>\n\n\n\n<p class=\"has-text-align-center\">SPG3A\u513f\u7ae5\u7ec4\u7ec7\u7531\u4e24\u4e2a\u6709\u60a3\u75c9\u631b\u6027\u622a\u762b3A\u578b\u5e7c\u513f\u7684\u5bb6\u5ead\u521b\u7acb\u3002<\/p>\n\n\n\n<p class=\"has-text-align-center\">\u827e\u7c73\u4e3d\u57282020\u5e7418\u4e2a\u6708\u5927\u65f6\u88ab\u8bca\u65ad\u51fa\u60a3\u6709SPG3A\u3002<br>\u5361\u7279\u5728\u516d\u4e2a\u6708\u5927\u65f6\u56e0\u672a\u8fbe\u5230\u53d1\u80b2\u8fd0\u52a8\u91cc\u7a0b\u7891\u800c\u88ab\u8bca\u65ad\u4e3a\u8111\u762b\u3002\u5728\u4ed65\u5c81\u65f6\uff0c\u7ecf\u8fc7\u6ce2\u58eb\u987f\u513f\u7ae5\u533b\u9662\u7684\u57fa\u56e0\u68c0\u6d4b\u540e\uff0c\u4ed6\u7684\u8bca\u65ad\u88ab\u4fee\u6b63\u4e3aSPG3A\u3002<br>\u5361\u7279\u548c\u827e\u7c73\u4e3d\u7684\u53d8\u4f53\u90fd\u662f\u201c\u65b0\u751f\u201d\uff0c\u5e76\u975e\u9057\u4f20\u81ea\u7236\u6bcd\uff0c\u4ed6\u4eec\u7684\u75c7\u72b6\u590d\u6742\uff0c\u4e0d\u4ec5\u5f71\u54cd\u817f\u90e8\uff0c\u8fd8\u5f71\u54cd\u4e0a\u80a2\u548c\u53e3\u8154\u808c\u8089\u3002<\/p>\n\n\n\n<p class=\"has-text-align-center\">\u5361\u7279\u7684\u7956\u7236\uff0c<a href=\"https:\/\/en.wikipedia.org\/wiki\/Joseph_Avellone\" target=\"_blank\" rel=\"noreferrer noopener\">\u7ea6\u745f\u592b\u00b7\u963f\u7ef4\u9686\uff0c\u533b\u5b66\u535a\u58eb<\/a>\uff0c\u5728\u5065\u5eb7\u548c\u751f\u7269\u533b\u5b66\u884c\u4e1a\u62e5\u6709\u4e30\u5bcc\u7ecf\u9a8c\u3002<br>\u4ed6\u521b\u7acb\u4e86\u5361\u7279\u795e\u7ecf\u7814\u7a76\u57fa\u91d1\u4f1a\uff0c\u4ee5\u8d44\u52a9<br>\u513f\u7ae5\u7f55\u89c1\u795e\u7ecf\u75be\u75c5\u539f\u56e0\u548c\u6cbb\u7597\u7684\u7814\u7a76\u3002<a href=\"https:\/\/www.massgeneral.org\/doctors\/21073\/craig-blackstone\" target=\"_blank\" rel=\"noreferrer noopener\">\u514b\u96f7\u683c\u00b7\u5e03\u83b1\u514b\u65af\u901a\u535a\u58eb<\/a>\uff0c\u9a6c\u8428\u8bf8\u585e\u5dde\u603b\u533b\u9662\u795e\u7ecf\u79d1\u8fd0\u52a8\u969c\u788d\u79d1\u4e3b\u4efb\uff0c\u662f\u57fa\u91d1\u4f1a\u7684\u9ad8\u7ea7\u79d1\u5b66\u987e\u95ee\uff0c\u4e5f\u662f\u957f\u671f\u4e13\u6ce8\u4e8e\u9057\u4f20\u6027\u75c9\u631b\u6027\u622a\u762b\u7684\u6770\u51fa\u7814\u7a76\u79d1\u5b66\u5bb6\u3002<\/p>\n\n\n\n<p class=\"has-text-align-center\">\u8fd9\u4e24\u4e2a\u5bb6\u5ead\u4e0e\u7814\u7a76\u4eba\u5458\u5bc6\u5207\u5408\u4f5c\uff0c\u5e76\u5c06\u5728<a href=\"https:\/\/kids-with-spg3a.mn.co\/\" target=\"_blank\" rel=\"noreferrer noopener\">SPG3A\u513f\u7ae5\u793e\u533a\u5e73\u53f0<\/a>\u4e0a\u4e0e\u5176\u4ed6\u5bb6\u5ead\u5206\u4eab\u7814\u7a76\u66f4\u65b0\u3002<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:10%\"><\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-cover alignfull has-parallax\" style=\"margin-top:0;margin-bottom:0;padding-top:var(--wp--preset--spacing--80);padding-bottom:var(--wp--preset--spacing--80)\"><div class=\"wp-block-cover__image-background wp-image-25 size-large has-parallax\" style=\"background-position:50% 50%;background-image:url(https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b6515ae143150e06c4365_Rectangle-10-min-1024x693.png)\"><\/div><span aria-hidden=\"true\" class=\"wp-block-cover__background has-background-dim-20 has-background-dim\" style=\"background-color:#0d527d\"><\/span><div class=\"wp-block-cover__inner-container is-layout-constrained wp-block-cover-is-layout-constrained\">\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-4c1dd492 wp-block-columns-is-layout-flex\" style=\"margin-top:var(--wp--preset--spacing--80);margin-bottom:var(--wp--preset--spacing--80)\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:15%\"><\/div>\n\n\n\n<div class=\"wp-block-column has-palette-color-8-color has-text-color has-link-color wp-elements-bca12f1f043620c98a0cc0d732729e55 is-layout-flow wp-block-column-is-layout-flow\" style=\"padding-top:var(--wp--preset--spacing--60);padding-right:var(--wp--preset--spacing--60);padding-bottom:var(--wp--preset--spacing--60);padding-left:var(--wp--preset--spacing--60)\">\n<div class=\"wp-block-group is-content-justification-left is-layout-constrained wp-container-core-group-is-layout-12dd3699 wp-block-group-is-layout-constrained\">\n<h2 class=\"wp-block-heading has-text-align-center\" id=\"\u4ec0\u4e48\u662fspg3a\">\u4ec0\u4e48\u662fSPG3A\uff1f<\/h2>\n<\/div>\n\n\n\n<p class=\"has-text-align-center\">SPG3A\u662f\u513f\u7ae5\u4e2d\u6700\u5e38\u89c1\u7684HSP\uff0c\u5373\u9057\u4f20\u6027\u75c9\u631b\u6027\u622a\u762b\u7c7b\u578b\u3002<br>HSP\u7684\u4e3b\u8981\u75c7\u72b6\u662f\u7531\u4e8e\u817f\u90e8\u808c\u8089\u7d27\u5f20\uff08\u75c9\u631b\uff09\u548c\u65e0\u529b\u5bfc\u81f4\u7684\u884c\u8d70\u56f0\u96be\u3002<br>\u4e00\u4e9b\u60a3\u8005\u8868\u73b0\u51fa\u66f4\u590d\u6742\u7684\u75c7\u72b6\uff0c\u5f71\u54cd\u8eab\u4f53\u5176\u4ed6\u90e8\u4f4d\u3002<br>\u75c7\u72b6\u7684\u4e25\u91cd\u7a0b\u5ea6\u901a\u5e38\u4f1a\u968f\u7740\u65f6\u95f4\u52a0\u91cd\u3002<\/p>\n\n\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-a89b3969 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button is-style-fill\"><a class=\"wp-block-button__link has-text-align-center wp-element-button\" href=\"https:\/\/kidswithspg3a.com\/about-spg3a\/\">\u4e86\u89e3\u66f4\u591a<\/a><\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:15%\"><\/div>\n<\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-cover alignfull\" style=\"margin-top:0;margin-bottom:0\"><span aria-hidden=\"true\" class=\"wp-block-cover__background has-palette-color-10-background-color has-background-dim-100 has-background-dim\"><\/span><div class=\"wp-block-cover__inner-container is-layout-constrained wp-block-cover-is-layout-constrained\">\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-28f84493 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column has-palette-color-8-color has-text-color has-link-color wp-elements-74fae5e7ce912f05b253c7321fefc73e is-layout-flow wp-block-column-is-layout-flow\" style=\"padding-top:var(--wp--preset--spacing--60);padding-right:var(--wp--preset--spacing--60);padding-bottom:var(--wp--preset--spacing--60);padding-left:var(--wp--preset--spacing--60)\">\n<h2 class=\"wp-block-heading has-palette-color-8-color has-text-color has-link-color wp-elements-1758273114ab3cb4e29e526c031310a2\" id=\"\u7814\u7a76\">\u7814\u7a76<\/h2>\n\n\n\n<p>\u5361\u7279\u57fa\u91d1\u4f1a\u5728\u7b2c\u4e00\u5e74\u4e3aSPG3A\u5efa\u7acb\u4e86\u836f\u7269\u53d1\u73b0\u548c\u57fa\u56e0\u6cbb\u7597\u7814\u7a76\u8ba1\u5212\u3002\u70b9\u51fb\u4e0b\u9762\u7684\u94fe\u63a5\u4e86\u89e3\u66f4\u591a\u3002<\/p>\n\n\n\n<p>\u6211\u4eec\u6566\u4fc3\u5927\u5bb6\u52a0\u5165<a href=\"https:\/\/clinicaltrials.gov\/ct2\/show\/NCT04712812?cond=NCT04712812&amp;draw=2&amp;rank=1\" target=\"_blank\" rel=\"noreferrer noopener\"><strong>\u65e9\u671f\u9057\u4f20\u6027\u75c9\u631b\u6027\u622a\u762b\uff08HSP\uff09\u81ea\u7136\u5386\u53f2\u7814\u7a76<\/strong><\/a>\uff0c\u8fd9\u5c06\u662f\u672a\u6765\u4efb\u4f55\u4e34\u5e8a\u8bd5\u9a8c\u7684\u8d77\u70b9\u3002\u8bf7\u76f4\u63a5\u901a\u8fc7\u7535\u5b50\u90ae\u4ef6\u8054\u7cfb\u7814\u7a76\u534f\u8c03\u5458Amy Tam\uff0c\u90ae\u7bb1\u4e3aamy.tam@childrens.harvard.edu\uff0c\u4ee5\u53c2\u4e0e\u7814\u7a76\u3002<\/p>\n\n\n\n<div class=\"wp-block-group has-border-color has-palette-color-4-border-color is-layout-constrained wp-container-core-group-is-layout-f611be13 wp-block-group-is-layout-constrained\" style=\"border-width:1px;padding-top:var(--wp--preset--spacing--50);padding-right:var(--wp--preset--spacing--50);padding-bottom:var(--wp--preset--spacing--50);padding-left:var(--wp--preset--spacing--50)\">\n<p class=\"has-text-align-center\">\u8981\u4e86\u89e3\u66f4\u591a\u5173\u4e8e\u5361\u7279\u57fa\u91d1\u4f1a\u4e3aSPG3A\u6cbb\u6108\u7814\u7a76\u8ba1\u5212\u548cHSP\u81ea\u7136\u5386\u53f2\u7814\u7a76\u7684\u4fe1\u606f\uff1a<\/p>\n\n\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-a89b3969 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link wp-element-button\" href=\"https:\/\/www.kidswithspg3a.com\/research\" target=\"_blank\" rel=\"noreferrer noopener\">\u70b9\u51fb\u8fd9\u91cc<\/a><\/div>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-vertically-aligned-center is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"780\" src=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b6519a5c3b6febb6042b6_Rectangle-90-min-1024x780.png\" alt=\"\" class=\"wp-image-24\" title=\"\" srcset=\"https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b6519a5c3b6febb6042b6_Rectangle-90-min-1024x780.png 1024w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b6519a5c3b6febb6042b6_Rectangle-90-min-300x229.png 300w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b6519a5c3b6febb6042b6_Rectangle-90-min-768x585.png 768w, https:\/\/kidswithspg3a.com\/wp-content\/uploads\/2025\/04\/635b6519a5c3b6febb6042b6_Rectangle-90-min.png 1148w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/div>\n<\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-group alignfull has-palette-color-8-color has-palette-color-3-background-color has-text-color has-background has-link-color wp-elements-0f08b4efb2e4e3b1e0da35551909d2c9 is-layout-constrained wp-block-group-is-layout-constrained\" style=\"padding-top:var(--wp--preset--spacing--80);padding-bottom:var(--wp--preset--spacing--80)\">\n<h1 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